For more information or further support available, we have compiled a comprehensive list of resources and websites you may find useful below.

 

Benefits
  • For an up-to-date guide to claiming PIP for those infected with a bleeding disorder, visit the Haemophilia Society UK benefits page.
  • For anyone who is over State Pension age, you can contact Age UK for benefit and monetary advice. Call the Age UK Helpline: 0800 169 6565 or go to the website.
  • Citizens Advice; Citizens Advice offers free, independent, confidential and impartial debt advice through their web chat service, over the phone and in person.
Finances
  • The Money Advice Service offer comprehensive free and impartial money advice. They can be reached online here or via phone on 0800 1387777
  • Which provides general money advice through its website, magazine, money helpline and legal service.
  • Directory of professionals offering mortgages, protection insurance, pensions, investments and general financial advice is available here
  • The Pensions Advisory Service gives free guidance on all pension matters. It also helps with problems, complaints or disputes you might have with your workplace or private pension arrangement. Its telephone helpline (0300 1231047) is staffed by pension specialists.

Debt
  • StepChange Debt Charity; StepChange Debt Remedy provides you with the expert advice, budget support and solutions to help you manage your debts.
  • National Debtline; the National Debtline offers free debt advice online through its My Money Steps tool and its web guides, fact sheets and sample letters.
  • Citizens Advice; Citizens Advice offers free, independent, confidential and impartial debt advice through their web chat service, over the phone and in person.

Support
  • Haemophilia UK is the only UK wide charity for everyone affected by a bleeding disorder: a community of members, supporters and healthcare professionals.
  • Haemophilia Wales provides information, support and advocacy to everyone with Haemophilia, Von Willebrands and other bleeding disorders, including their families and carers.

Health (Nearest Haemophilia Centres)
  • Abergavenny
    Nevill Hall Hospital
    Brecon Road
    Abergavenny
    Monmouthshire
    NP7 7EG
    Telephone; 01873 732 372
    Emergency / Out of Hours; 01873 732 732 – Ask for on-call Haematologist

 

  • Bangor
    Alaw Unit
    Ysbyty Gwynedd
    Penrhosgarnedd
    Bangor
    North Wales
    LL57 2PW
    Telephone; 01248 384 008
    Emergency / Out of Hours; 01248 384 384 – Ask for on call Haematologist

 

  • Cardiff
    The Arthur Bloom Comprehensive Care Centre
    University Hospital of Wales
    Heath Park
    Cardiff
    CF14 4XW
    Telephone; 02920 743 403
    Emergency / Out of Hours; 02920 747 747 – ask for on-call Consultant Haematologist

 

  • Swansea
    Swansea Haemophilia Centre
    Singleton Hospital
    Sketty
    Swansea
    West Glamorgan
    SA2 8QA
    Telephone; 01792 200 368
    Emergency / Out of Hours; Adult: 01792 285 332, Ward 12 Paediatric: 01792 702 222 ext. 5678
Grants

To search a database of all other possible sources or help that you may be eligible for, use the Turn2us online grant search

Travel

If you are travelling, you may find the global list of treatment centres useful for planning prior to your trip. Available at World Federation of Hemophilia